A woman from Manchester has spoken out about enduring decades of debilitating pain before receiving a diagnosis for endometriosis, describing the experience as “absolutely barbaric.”
Nichola Howells said she began experiencing severe symptoms, including extremely heavy periods, at just 14 years old. Despite repeated visits to doctors and gynecologists, she says her concerns were repeatedly dismissed, delaying her diagnosis for years.
“It’s barbaric. That’s how bad the pain is,” Howells said, recounting the physical toll of the condition, which left her struggling with chronic pain affecting her lower back and groin, at times requiring the use of a walking aid.
Her experience mirrors that of many women across the UK and beyond. According to the World Health Organization, approximately one in 10 women are affected by endometriosis, a chronic condition where tissue similar to the lining of the uterus grows outside it, often causing severe pain and fertility issues.
Despite its prevalence, diagnosis times remain a major concern. Testimonies shared alongside Howells’ story reveal women waiting anywhere from five to over 25 years for a confirmed diagnosis.
Many reported being told their symptoms were “normal,” contributing to prolonged suffering and delayed treatment.
Health advocates say this pattern reflects broader systemic issues in how women’s pain is perceived and treated within healthcare systems.
In response, the UK’s Department of Health and Social Care acknowledged the shortcomings, stating that “waiting decades for an endometriosis diagnosis is unacceptable.” The department says it is working to address the issue through expanded training for healthcare professionals, improved waiting times, and the rollout of specialized women’s health hubs.
Campaigners, however, argue that more urgent and sustained action is needed to ensure that women’s symptoms are taken seriously and diagnosed earlier.
For Howells and others, sharing their stories is a step toward raising awareness and pushing for change in how endometriosis—and women’s health more broadly—is handled.
